Activity: The Data of Us

This activity references “The Digital Life of Henrietta Lacks: Reforming the Regulation of Genetic Material” by Kelsey Russo.

Group Name

What concerns does Russo articulate about genetic research?

Why does Russo believe current regulations are insufficient for addressing these concerns?

What changes does Russo propose to address her concerns?

What commonalities and differences do you see in genetic data and other kinds of data we have considered in this course?

Should there be regulations governing historical data? Half your group should make an argument for "yes," and the other half for "no."